Hematology Society of Bangladesh celebrated World Hemophilia Day

The Haematology Society of Bangladesh is organizing a roundtable discussion on 17 April 2025 to commemorate World Hemophilia Day 2025. This event features a roundtable discussion with key government stakeholders, treating physicians, and experts in the field. The focus of the discussion is to address critical issues related to the management and treatment of hemophilia in Bangladesh. The session is titled, “Optimizing Hemophilia Management in Bangladesh: Addressing the Societal Burden Challenges”.

The event brings together prominent figures from the Ministry of Health and Family Welfare, Directorate General of Health Services (DGHS), Hematologists and media professionals to discuss the following topics.

1. Central Patient Registry: The Haematology Society of Bangladesh, recognizing the importance of accurate data collection and patient management, advocated for the establishment of a central patient registry. This registry, potentially managed by the Management Information System (MIS) at the DGHS, is essential for monitoring and managing hemophilia patients across the country. A centralized database will provide comprehensive data to inform healthcare policies and improve patient outcomes.

2. Finalization of National Hemophilia Guideline: Another critical point of discussion is the finalization of the National Hemophilia Guideline by the Non-Communicable Disease Centre (NCDC) at the DGHS. The Haematology Society is urging the swift completion and implementation of these guidelines to ensure standardized protocols for the diagnosis, treatment, and management of hemophilia. Standardized guidelines are vital to providing consistent and high-quality care across various healthcare settings in both urban and rural areas.

3. Support for Patients: The Haematology Society is calling for increased support for Hemophilia patients through the provision of essential treatments such as Factor VIII and Emicizumab. These treatments are crucial for managing hemophilia effectively and improving patients' quality of life. Ensuring their availability and accessibility is a primary concern that needs to be addressed by the healthcare system.

Prof. Dr. Md. Abu Jafor, Director General, Directorate General of Health Services (DGHS) and Dr. Shah Md. Helal Uddin, Additional Secretary (Budget Wing), Health Services Division, Ministry of Health & Family Welfare, Professor Amin Lutful Kabir, President of the Haematology Society of Bangladesh, also joined the roundtable discussion along with other relevant government officials and key treating physicians.